I’ve now been on treatment for Lyme disease for a little overÂ twelveÂ months. Â Without a doubt, this has been the worst twelve months of my entire life. Â It’s almost impossible to convey the range of pain that I have endured, the mental anguish, and the struggle to find the will to live.
Six months ago I was about at rock bottom. Â I was going trough herxes from hell, suffering from heart complications including cardiac pauses (my heart would stop for several seconds at a time), and headaches that felt like someone was driving a pick axe into my skull. Then there was the brain fog; the confusion and memory loss that left me feeling stupid and helpless in front of people who just didn’t understand how I could not remember simple things I had talked about with them only a few hours ago.
On top of that, I had extreme fatigue that left me unable to climb the stairs at home without stopping every few steps to get my strength back in my legs. Â Many of my days have been spent as a quivering mess on the floor, unable to speak, move or do anything because I was in so much pain and close to passing out.
In short, I was pretty fucked and thought I was about to die at any time.
Then I discovered an antibiotic that was actually making a difference to my heart symptomsâ€”it’s called Bactrim (orÂ Trimethoprim/sulfamethoxazole to give it its full name). Â I started taking it in late December and two weeks later I was heart symptom free! Â The course of drugs then ran out (I had 4 weeks’ worth) and ten days later I had relapsed and was getting chest pains and palpitations again. Â I started another month’s course and felt better again after a couple of weeks, so it was clear that this drug was doing something to help me with my BartonellaÂ infection.
It struck me that I have been so ill for a long time that I hadn’t really noticed that I was slowly getting better lately. Â At least I hope I am getting better â€” I’m now at a “wait and see” stage after having stopped the Bactrim for a second time and hoping to hell that I don’t have another relapse. Â I’m probably about 50% better than I was a year ago, I now have to wait for the last remnants of the Lyme and Bartonella bacteria to be driven out of my system.